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Meaning of life
"The meaning of life is to find your gift. The purpose of life is to give it away." ~ Pablo Picasso
Tuesday, November 24, 2009
Monday, November 23, 2009
Lyrics From The Songs Of Life
Angels On High
By Brian N. Walin
Why do we lose those that we love? It’s hard to perceive what’s waiting above. We struggle with loss, the sadness it brings. There’s anger and hatred and all of those things.
Why did this happen to you in your life? How will you deal with the grief and the strife? Why did it happen? Where did they go? Your heart hurts so much. It’s such a big blow.
You ask all your questions, but you never hear, the answers you need and some that you fear. It’s all in God’s plan. He knows all too well. We all have a fear of going through Hell.
You just can’t go on, you’ve needed him so. But his time here is over and now he must go. The angels have cometh to taketh his soul, while you plant the remains inside of a hole.
Why did this happen to you in your life? How will you deal with the grief and the strife? Why did it happen? Where did they go? Your heart hurts so much. It’s such a big blow.
You ask all your questions, but you never hear, the answers you need and some that you fear. It’s all in God’s plan. He knows all too well. We all have a fear of going through Hell.
You just can’t go on, you’ve needed him so. But his time here is over and now he must go. The angels have cometh to taketh his soul, while you plant the remains inside of a hole.
He sees all this different. There’s no loss he feels. He now knows the plan and so he now yields. A place upon high he now resides, to watch over us all, God’s rules he abides.
A new morning rises. The dew it does rest. The sun shines so brightly. Now here comes the test. Will anger consume you or will you now know, it’s all in God’s plan, when it’s our time to go?
Remember the good times, the laughter, and love. And always keep looking to that sky up above. Search for the rainbow, the colors it brings, the magic and wonder in all of those things. Smile and enjoy the time you have left. Your life is a tapestry woven as weft.
A new morning rises. The dew it does rest. The sun shines so brightly. Now here comes the test. Will anger consume you or will you now know, it’s all in God’s plan, when it’s our time to go?
Remember the good times, the laughter, and love. And always keep looking to that sky up above. Search for the rainbow, the colors it brings, the magic and wonder in all of those things. Smile and enjoy the time you have left. Your life is a tapestry woven as weft.
Your time will come too, and then you will know, the plan that God has and where YOU will go. Be rid of your anger, your sorrow, and strife. Keep moving ahead, improving your life. Keep love in your heart and stop asking, “Why?” It’s all in God’s plan, so try not to cry, and someday you will be with angels on high.
©2005 Brian N. Walin (All rights reserved)
07/04/05
Thursday, November 12, 2009
Spotlight on Cancer - Part 3
The Finale

Bob Pemberton won his freedom from cancer the morning of October 28, 2009. With ROTC as pall bearers and the First Baptist Church choir, 90 strong, singing towards the heavens, he was laid to rest in the Florida National Cemetery with full military honors. Taps played, a gun salute, and his battle was over. Bob Pemberton will now and forever rest in peace without cancer.
The last time I spoke with Bob, we had put the final touches on Part 2 of Dead Man Talking. October 26 was the last time we communicated. He wanted to leave a message for others to learn. I think he accomplished that goal here and perhaps taught us all how fragile life really is. Please take a moment to learn from this courageously strong man and ask yourself...Are you living life to the fullest? There are no guarantees how long you will be here.
As Always...Peace B
©2009 Brian N. Walin (All rights reserved)
LINKS: PART 1 - PART 2
Wednesday, November 4, 2009
Just a Thought...
A Single Grain of Sand
In the midst of the Universe, is there a common thread? Are we the end, beginning, or middle? Have we the acceptance to understand that there are billions of universes such as ours with infinite possibilities of life within the cosmos?

Is it a question of God or mathematics? Surely we are not alone. Can our minds grasp how minuscule we are in the greater scheme of things? That everything that you accomplish in your daily life has absolutely nothing to do with the greater equation? Do you understand what a gift it is to have this privilege for the very short time you walk this Earth, which is nothing more than a single grain of sand in a cosmic ocean?

Do you realize there are more than 400,000,000,000 stars in the Milky Way Galaxy alone? When you walk along a beach, can you conceptualize that Earth is represented by nothing more than a single grain of sand and you are one of 6.795 Billion people living on that single grain of sand? Can you even comprehend the significance of that, or perhaps the insignificance?
“From an intergalactic vantage point we would see, strewn like sea froth on the waves of space, innumerable faint, wispy tendrils of light. These are the galaxies…
A galaxy is composed of gas and dust and stars – billions upon billions of stars. Every star may be a sun to someone.
There are some hundred billion galaxies each with, on the average, a hundred billion stars. In all the galaxies there are perhaps as many planets as stars, 10 to the eleventh x 10 to the eleventh = 10 to the 22nd power. That is, ten billion trillion" - Carl Sagan
We have been given the most precious gift ever to be bestowed: Life on a single grain of sand. Why do we continue to devalue that? War has no purpose. Why is it so hard to live in peace, and love one another? It's not a question of who's right or who's wrong, but an understanding we all have a right to our opinion as long as no harm comes to another. It doesn't matter which God or Deity you believe in, as long as you believe in the greater good for all mankind and that only a great power could have created it.
Do you understand all this? Can you not see it? Or do you believe that you, your life, your family, your country, or your world is indeed the center of the Universe?
Peace B
In the midst of the Universe, is there a common thread? Are we the end, beginning, or middle? Have we the acceptance to understand that there are billions of universes such as ours with infinite possibilities of life within the cosmos?

Is it a question of God or mathematics? Surely we are not alone. Can our minds grasp how minuscule we are in the greater scheme of things? That everything that you accomplish in your daily life has absolutely nothing to do with the greater equation? Do you understand what a gift it is to have this privilege for the very short time you walk this Earth, which is nothing more than a single grain of sand in a cosmic ocean?

Do you realize there are more than 400,000,000,000 stars in the Milky Way Galaxy alone? When you walk along a beach, can you conceptualize that Earth is represented by nothing more than a single grain of sand and you are one of 6.795 Billion people living on that single grain of sand? Can you even comprehend the significance of that, or perhaps the insignificance?
![]() |
| The Milky Way Galaxy |
“From an intergalactic vantage point we would see, strewn like sea froth on the waves of space, innumerable faint, wispy tendrils of light. These are the galaxies…
A galaxy is composed of gas and dust and stars – billions upon billions of stars. Every star may be a sun to someone.
There are some hundred billion galaxies each with, on the average, a hundred billion stars. In all the galaxies there are perhaps as many planets as stars, 10 to the eleventh x 10 to the eleventh = 10 to the 22nd power. That is, ten billion trillion" - Carl Sagan
![]() |
| A Galaxy Cluster |
We have been given the most precious gift ever to be bestowed: Life on a single grain of sand. Why do we continue to devalue that? War has no purpose. Why is it so hard to live in peace, and love one another? It's not a question of who's right or who's wrong, but an understanding we all have a right to our opinion as long as no harm comes to another. It doesn't matter which God or Deity you believe in, as long as you believe in the greater good for all mankind and that only a great power could have created it.
Do you understand all this? Can you not see it? Or do you believe that you, your life, your family, your country, or your world is indeed the center of the Universe?
![]() |
| A Single Grain of Sand - You are HERE |
Peace B
Saturday, October 31, 2009
Spotlight on Cancer - Part 2
Dead Man Talking
By Brian N. Walin
Today we explore a world that is most often off limits. A topic that is taboo, or gently whispered in some homes: What it’s like to die. But when you get veteran cancer patients together from around the world and from all walks of life, nothing is out of bounds when it comes to this topic. For seasoned cancer patients, it’s a reality ever-circling overhead like a vulture.
I think we as cancer patients have so much time to think about dying, that often we become desensitized to it. We tend to see life from a different perspective, and begin to appreciate more. Cancer clarifies the honest realities of life and that we all have an end, often sooner rather than later for some cancer patients. The new convertible BMW and the million-dollar home are no longer life’s goal. You simply want to survive.
As you approach what could be your final days, you want to make sure your loved ones are secure. As I was preparing to write this, Bob Pemberton was planning every detail of his own funeral with his wife Joyce and tearfully reviewed insurance policies with their agent. Bob has volunteered to be a participant in an “End of Life” study at The Moffett Cancer Center so others may learn. In the midst of all this, he generously took the time to answer questions from fellow cancer patients wanting to glean something from his experiences.
At a time like this, there are so many questions. Darkness is knocking as you reevaluate your life. Religion often becomes a deeper part of the equation as you view your own mortality at hand. There is so much to do if you have been a procrastinator. Do you have a will, a trust, or a clear understanding of how your loved ones will be provided for? How will the bills left behind be paid? Are all your insurance options covered? There are plenty of options for insurance if you plan ahead, but few if you wait until it’s too late.
Most of this should have been attended to years ago, long before you ever get sick, allowing peace of mind if and when tragedy strikes. But, there are those that refuse to believe they will ever die or simply refuse to discuss it until life spins out of control.
Bob has been married to Joyce for over 32 years. Their union was blessed with beautifully healthy children. The Pembertons are the epitome of the successful American family.
Bob served our country in the Army as a First Sergeant Sapper, an elite combat engineer, at Fort Bragg. He became a successful real estate agent and worked with a computer team in Chicago on the side. He is a well-educated man with the emotional strength of an ox, and with his Army attitude, nothing was going to bring this man down.
His strength is innate, as a close friend once recalled how tough Bob has always been, “When we were in ninth grade, Bob was a star on the basketball team. One day at practice he missed a shot or a rebound, and punched the wall in frustration. Bob broke something in his hand. He was mad at himself -- but the pain never bothered him.”
His wife Joyce works for the American Cancer Society. They are active with church and own a well-appointed home in a quiet suburb equipped with a pool, a yard full of critters, and a loving dog that lounges around the house. They are the American dream personified.
Life was blissful until the day Bob felt his first lump. Dreams do come to an end. Life would never be the same from that day forward. His war with cancer began, and life took on new meaning. Bob found himself on the front lines of a whole new Army and waged a personal war to survive. First Sergeant Pemberton would battle cancer for the rest of his life. All other life goals would take a back seat to the vicious enemy within.
With his fifth recurrence, he was recently sent home to die after a failed operation that would have removed a tumor, as well as the remainder of his tongue, esophagus, and larynx. The plan was to pull his stomach up to the back of the throat, leaving him permanently speechless.
It seems the tumor had attached itself to his esophagus and grown dangerously against his carotid artery with major veins wrapped around. Any attempt to remove it, could be catastrophic. The severity was discovered 90 minutes into surgery. They stapled him back up and delivered the unimaginable news to Joyce. There was nothing more they could do for Bob. If the tumor continues to grow as predicted, it will cut off the blood supply to Bob’s brain and the curtain will fall.
Bob has said that getting cancer has been the worst and best experience he's ever had. I have said those very words myself. So much more of the world becomes exposed to you. You become more conscious of what’s really important as you watch others shuffle through life thinking they have all the answers. I just smile and say to myself, “They just don’t get it.” And because I was once one of them, I understand why. You need a life-altering equation to discover a life-clarifying answer.
| Bob and Joyce - Relay for Life |
Bob and Joyce are in this together. Joyce, the ever-loving wife, tries to understand every procedure and chemotherapy Bob encounters, so she can provide him with the best possible care. It’s the minefield side of the equation that leaves most minds boggled. Joyce shows the outward signs of stress with every breath, while trying to keep herself together so she won’t fall apart in front of others, especially Bob.
Joyce plays caregiver while still working for the American Cancer Society. She’s not new to the cancer equation, yet she finds it difficult at times. Joyce says, “As a caregiver, here's the deal....you are in a constant state of helplessness. I can't count the number of times I've said, "Can I do anything?" She maintains her own blog, THE LATEST FROM BRANDON, recounting their struggles with this deadly disease.
Caregiving is not an easy task. I have been on both sides of that coin, and, at times, I too have felt helpless and overwhelmed. After all, you’re responsible for someone else’s life.
Even though loved ones and caregivers are directly involved with treatments and the daily routine, no one will ever understand the philosophical side of life better than a cancer patient. But even when giving clarity, cancer does not reveal all of life's secrets. We still need to learn from others. With this in mind, I asked Bob if he would answer a few questions in his darkest hour. He graciously agreed in the hopes that others may learn.
The following participants have been carefully chosen from around the globe to ask Bob, a miraculously strong man staring death in the eye, some hard-hitting, direct, personal questions. These are people who have successfully mastered the art of living with cancer and have the insight to ask real questions, based on personal experiences. Though Bob is unable to speak at the moment, it did not stop him from communicating. From Bob’s bed, with hospice hovering nearby, he answers questions from others who also have had their lives altered by this voracious disease.
******************************************************
Jeanne Sather, from Seattle, Washington, is a world-traveled, professional writer and jewelry designer who has been living with metastatic breast cancer for 11 years, and has tangled with a deadly melanoma. She has had more radiation and chemotherapy then she cares to recall. At this point she jokes that there must be a pale green glow emanating from her body! Her cancer is considered incurable, but she continues to fight with a vengeance. She also maintains a no-holds-barred blog: The Assertive Cancer Patient
Jeanne would like to ask Bob:
Jeanne: What do you know now, that you wish you’d known when you were first diagnosed? Do you have any regrets?
Bob: As Joyce and I look back over the several things that were revealed to us about what was being visited upon us, we both agree that knowing more would not have been helpful. The information was given out or dispensed in the right portion so that we were not too overwhelmed by the totality of it all. I think at each turn we were hopeful that this was the last episode as opposed to knowing there were five such episodes to come. We were given several courses of action to choose from, radiation, surgery, and if we wanted to go outside the standard medical treatment scenario, we could have selected a holistic approach. Traditionally, this has not been a direction we would take and did not want to take this type of treatment at such a dire moment within our life.
We have continually placed this within the lens of how we view all things and that is one of the Biblical World View. How is our experience consistent within the context of historic characters of faith, and how is our behavior consistent with those of the same characters.
Sharifah Rashida bt. Syed Ahmad, has been teaching English Language, Commerce, and Mathematics for 17 years and resides in Kedah, Malaysia. She lost her tongue to cancer (total glossectomy) in April 2008, being led down the same ugly path as Bob and I. Her country provides government managed health services and Sharifah’s care seems to be remarkably on par with the U.S. While still on a feeding tube, she’s lovingly named “Miss Peggy,” she longs for the day a simple piece of bread with butter will pass her lips without a struggle. She maintains an insightful blog: THE TONGUELESS TALK - Battling Oral Cancer, recounting her fight through the oral cancer jungle.
Sharifah’s questions to Bob are:
Sharifah: I’m curious to know how you handle your emotions when you have run out of options and know your time is almost up? Are you trying alternative treatments or are you willing to?
Bob: As far as our emotions go, we have been at opposite sides of the spectrum at the same time and at different times. We remain faithful to the Biblical World View, meaning that those things (principles) we have held dear to as young people, then as young parents, we will continue to embrace them as we grow old and are threatened by the issue of cancer. At this stage of life we do not question “Why me,” but rather, “Lord, since it’s me, help me to manifest outwardly those attributes that most reflect Your Love, and Grace.”
Joyce and I have not embraced alternative treatments in the past and don’t judge or criticize those who do, but since we’ve no first-hand knowledge of “lemon grass” or other popular topics of the day, we decided to stay with those treatments that have more consistent documentation through the medical community. I have no doubt there are success stories to be heard, but I’m not certain that for my tumor type or cancer type I would want to expend the emotional calories.
Dawn, is a retired nurse practitioner living in Richmond, BC, Canada. She was apprehensive about posing a question to Bob because the subject hits too close to home. Her father died within three months of being diagnosed with a colon cancer that wasn’t caught until after it had metastasized, which was discovered during a routine chest X-ray. Both her aunt and uncle are currently in palliative care. Bob's blog brought her to tears, making it too difficult to ask a man in his position a question. After careful consideration and a little prodding, she finally relented with this question for Bob:
Dawn: Thirty-five years ago I was administering Demerol to a woman whose life signs were fading and with her last breath near, she asked, “Am I dead yet?” I still remember that day. Do patients ever realize how hard it is for health-care professionals to care for terminally ill patients, and not take the thought of them home with us every night?
Bob: Dawn, I must confess that medical personnel are not the first thought I’ve had considered when discussing my diagnosis, but I’m often reminded in conversation whether the nurse or doctor is in need of a good word when having to discuss bad news.
Dr. Wendy Harpham is a doctor of internal medicine and 19-year survivor of multiple recurrences of lymphoma. When ongoing illness forced her to retire from clinical medicine, she turned to writing and speaking to help others. She's written award-winning books for patients and has a regular column --"View From the Other Side of the Stethocope" -- in a professional oncology publication. She also has an active blog, entitled: Dr. Wendy Harpham - On Healthy Survivorship. All her work revolves around the notion of Healthy Survivorship, a term she coined in 1992.
A "Healthy Survivor" is a survivor who (1) gets good care and (2) lives as fully as possible. I am assuming you are getting optimal care, which means your cancer has received the best treatments to control it, your pain is optimally controlled, your nutrition is optimally managed and so on.
Dr. Harpham: Your treatment options have run out, and you know that most people in your situation die from their disease. How are you calming your fear of the unknown, and how are you quieting the grief over losing everything you know and love, so that you can “live as fully as possible” until you die?
Bob: Pointing back to the answer of Q#2, I think it’s necessary to point out that we look to the writings that support our faith of purpose, direction, and motivation. I look first to Psalms 55:22 to help frame the situation for me and allow my limited mind to grasp the infinite. “Cast your burden upon the LORD and He will sustain you; He will never allow the righteous to be shaken.” I have applied this to both sides of the grave and find comfort in it.
In a summarizing way, I would say applying the Biblical Worldview would also indicated a life time of Bible studies and discussions of practical application of these end of life scenarios have helped in “calming fears of the unknown.” We have learned to be absent from the body is to be in the presence of the Lord. There is some consolation in that as well.
Daria Maluta, is a breast cancer survivor from Edmonton, AB, Canada who was first diagnosed in 2000 with a recurrence in 2004. Four years later a lump showed up during her annual mammogram. Further investigation revealed her Stage IV cancer had spread to her bones, liver, and lungs. She has been on constant three-week cycles of Taxotere chemotherapy since August of 2008. Her father had bladder cancer and her father-in-law died of brain and liver cancer. She authors Living with Cancer, a very interesting and detailed blog surrounding her high and lows with this dreaded disease. Daria had a whole list of questions, so we picked her most important:
Daria: Spiritually speaking, how has this disease altered you…from the inside out? Speak to being more mindful…a greater awareness in the present moment.
Bob: The disease itself has allowed me to move from the intellectual knowledge about Christ to a full emotional buy-in to all the teachings he has instructed.
Carl Wilton has been a Presbyterian minister for 19 years at the Point Pleasant Presbyterian Church in Point Pleasant Beach, New Jersey. Diagnosed with non-Hodgkin lymphoma in December, 2005, he went into remission for eight months following chemotherapy, after which his cancer returned in an indolent form, one that's considered incurable, but treatable. He's been on a watch-and-wait protocol ever since. Carl continues to reflect on life, health, and faith on his blog, A Pastor's Cancer Diary.
With all Carl's experience surrounding spiritual life matters, he brings forth this question:
Carl: How has your awareness of God's presence in your life changed as you've come to contemplate the inevitability of your own death?
Bob: His presence in my life is only more evident with each passing moment.
I have so many questions for Bob. After all, this could be the one man who could save my life by my learning from his mistakes, but there is one burning question that haunts me every waking hour: When do I give up? So I had to ask Bob:
Brian: It appears you might have run out of options, are you contemplating giving up the fight?
Bob: I can’t tell the difference between “giving up” or resignation. My comments mentioned above might put proper understanding to it.
******************************************************
While some cancer patients and their families might choose to ignore the pink elephant in the room, these participants groom it, feed it, and ride it into the sunset, by blogging, writing books, and inspiring others with the spiritual aspects of the cancer realm.
We all are going to die, never knowing when. Are you prepared? Will your loved ones be provided for? Have you thought about putting a plan in motion before something happens? What will you do with the time you have left?
Live your life strong, no matter the length, and count your blessings, especially if it’s longer without cancer. But even if you find yourself in our shoes, it’s not over unless you stop fighting. Don’t waste it. Plan ahead for the darkest hours and do something life-changing today.
With Bob leading the way, we’ve managed to examine the beginning, middle, and end of the cancer life cycle. And in the end, that’s all you really have…The End
A final thought:
“I think those that do not encounter cancer are missing out on one of the most enriching times in life. People choose this time in life to share how much they care for you ... do yourself a favor, don't wait for your friends to have cancer to let them know how much you enjoy their company, or care for them. Find a reason to tell your non-cancer friends how much they mean to you. Your life will be enriched by it ... without the whole cancer thing.” –Bob Pemberton
©2009 Brian N. Walin (All rights reserved)
LINKS: PART 1 - PART 3
Saturday, October 24, 2009
Spotlight on Cancer - Part 1
Dead Man Talking
After living with my cancer for many years now, I have met several cancer patients along the way. Most have some other type of cancer. Only a few have the same, rare tongue cancer that I do.
What makes this story so difficult to write is the fact that most tongue cancer patients I have met along my journey are no longer with us. Squamous carcinoma of the oral cavity is responsible. This is an extremely aggressive cancer that leaves the recipient with a 50/50 chance to live five years, after being diagnosed. If it has infiltrated the lymphatic system, it can further worsen those odds by an additional 25%.
In 2007, after being diagnosed myself, I began to aggressively fight back. I underwent several operations to remove the Stage IV venomous growth along my left lateral tongue and the floor of my mouth. Cancerous lymph nodes were excavated from my neck. An uncomfortable tracheotomy allowed me to breath. The corners of my mouth were filleted open to allow access to the project within.
Body parts were rearranged: a skin graph from my thigh covered the hole that was left after removing a skin flap from my forearm that was then used to fashion a new tongue. Dangerous radiation and cancer killing chemotherapy followed…more invasive surgery to my oral cavity and a two and a half year engagement with a life sustaining feeding tube protruding from my belly.
After months of speech therapy, mouth and tongue exercises, food modification, depression, and mounds of mind-numbing medication, I’m exhausted. I’m still alive, winning my battle, and eating some solid foods, but always concerned cancer will strike again and I will repeat this dance anew.
The clock is ticking. Half of my time here is gone, according to statistics, yet I am still cancer-free. In my mind I fear the evil will return. I think that is a fear all healthy survivors have. You live day to day with that cancer cloud looming overhead. I’m free, but am I really?
Every time I lose a fellow tongue cancer patient, it’s a staggering blow that brings me front and center to the harsh realities of this dreaded disease. I personally don’t have an issue with dying. I’ve faced that road before. It’s the suffering, pain, and overall loss of the quality of life that goes along with continual treatment that is an issue for me. Horrifically, “life altering” does not begin to describe the reality of the situation.
Many friends and family members of cancer patients ask themselves, “What do I say at a time like this? How do I react? What can I do?” or even, “Why?” as they watch their loved ones suffer a slow, agonizing defeat.
First, let me go on record to say there is no answer to, “Why?” It is what it is! It isn’t anybody’s fault. It’s not a punishment, nor is it anything you have total control over. For those of you with controlling personalities such as myself, let this one go!
Having been close to death a few times now, I feel I can give advice as to how you should treat a cancer patient. Just treat us as you always have. No matter how bad we look or how weak we are, we want life to be as normal as possible. Save the tears, we don’t need them. Jokes are a good thing, laughter is best. Reminisce about the good times, and hugs are always welcome, if not longed for.
We are no different with or without cancer, even if we have no hair! Be honest with us and yourself. We know our odds aren’t good. Don’t make things worse by throwing a pity party. Now is not the time to hide from the truth. While life hangs in the balance, emotions are raw. Don’t say or do things YOU might regret later AND say all the things you wish to say, before we are gone. We need to hear them now.
We need a caregiver and patient advocate who is strong and caring and understanding of OUR wishes and not those you think we want. If others object to the plan in motion, remind yourself, these are our wishes, not theirs. This could be our finale, our last goodnight, and therefore needs to be our choice how things should be managed.
Personally, I don’t like to be fussed over. I prefer to do as much as possible for myself, even if it appears I’m struggling. I will let you know when I need help. I need that independence to get my strength back. If I let you do too much, it’s like saying, “I give up!” which is never a good thing. I think it’s essential for a cancer patient to remain emotionally strong and independent to survive, if not be down right stubborn.
I’m compelled to write this, because once again a fellow tongue cancer patient’s life hangs in the balance. The harsh realities are rearing their ugly heads. Bob Pemberton, is a friend and fellow tongue cancer patient. I met Bob after I completed my last surgery, while still sporting my feeding tube. We had a long “talk” about life with tongue cancer and the necessity of a feeding tube.
Bob, is someone I look up to after being through so much more than I have at this point. When I now look at Bob, I see what my future might be. He’s like the senior classmen and I the novice freshman student.
I generally maintain this blog to surround readers with my life and my cancer issues…Me, Me, Me! But, today I am inclined to open up the door and let Bob in. Not just Bob, but other readers and fellow cancer patients. I thought I would set the stage and have an open, raw, discussion with a man who is facing a death sentence. Something has compelled me to do this. I can’t tell you why, but I think either selfishly I need it, or I feel that others need to hear it. Especially those who are healthy and think they have something to worry about. Perhaps we’ll even touch on the meaning of life.
For me this is a personal project. I wanted to enroll the help of several people who are also surrounded by cancer in some way, to interview Bob. My goal is to obtain an open and honest dialog about doctors, treatments, and what it is like when you’re not sure if there is a tomorrow. For those of you who get upset because you get caught in a traffic jam, or have lost your home or job in this bad economy…look out, this might just change how you view the rest of your life!
If you had the opportunity to ask a dying man life altering questions, would you, could you? In Part 2 of this blog post you will find six seasoned cancer veterans who volunteered to step up and ask Bob some riveting and emotional questions. Bob has agreed that EVERYTHING is on the table for discussion. This has not been easy for any of us involved. So, stay tuned for the most enlightening story I’ve ever written.
LINKS: PART 2 - PART 3
By Brian N. Walin
After living with my cancer for many years now, I have met several cancer patients along the way. Most have some other type of cancer. Only a few have the same, rare tongue cancer that I do.
What makes this story so difficult to write is the fact that most tongue cancer patients I have met along my journey are no longer with us. Squamous carcinoma of the oral cavity is responsible. This is an extremely aggressive cancer that leaves the recipient with a 50/50 chance to live five years, after being diagnosed. If it has infiltrated the lymphatic system, it can further worsen those odds by an additional 25%.
In 2007, after being diagnosed myself, I began to aggressively fight back. I underwent several operations to remove the Stage IV venomous growth along my left lateral tongue and the floor of my mouth. Cancerous lymph nodes were excavated from my neck. An uncomfortable tracheotomy allowed me to breath. The corners of my mouth were filleted open to allow access to the project within.
Body parts were rearranged: a skin graph from my thigh covered the hole that was left after removing a skin flap from my forearm that was then used to fashion a new tongue. Dangerous radiation and cancer killing chemotherapy followed…more invasive surgery to my oral cavity and a two and a half year engagement with a life sustaining feeding tube protruding from my belly.
After months of speech therapy, mouth and tongue exercises, food modification, depression, and mounds of mind-numbing medication, I’m exhausted. I’m still alive, winning my battle, and eating some solid foods, but always concerned cancer will strike again and I will repeat this dance anew.
The clock is ticking. Half of my time here is gone, according to statistics, yet I am still cancer-free. In my mind I fear the evil will return. I think that is a fear all healthy survivors have. You live day to day with that cancer cloud looming overhead. I’m free, but am I really?
Every time I lose a fellow tongue cancer patient, it’s a staggering blow that brings me front and center to the harsh realities of this dreaded disease. I personally don’t have an issue with dying. I’ve faced that road before. It’s the suffering, pain, and overall loss of the quality of life that goes along with continual treatment that is an issue for me. Horrifically, “life altering” does not begin to describe the reality of the situation.
Many friends and family members of cancer patients ask themselves, “What do I say at a time like this? How do I react? What can I do?” or even, “Why?” as they watch their loved ones suffer a slow, agonizing defeat.
First, let me go on record to say there is no answer to, “Why?” It is what it is! It isn’t anybody’s fault. It’s not a punishment, nor is it anything you have total control over. For those of you with controlling personalities such as myself, let this one go!
Having been close to death a few times now, I feel I can give advice as to how you should treat a cancer patient. Just treat us as you always have. No matter how bad we look or how weak we are, we want life to be as normal as possible. Save the tears, we don’t need them. Jokes are a good thing, laughter is best. Reminisce about the good times, and hugs are always welcome, if not longed for.
We are no different with or without cancer, even if we have no hair! Be honest with us and yourself. We know our odds aren’t good. Don’t make things worse by throwing a pity party. Now is not the time to hide from the truth. While life hangs in the balance, emotions are raw. Don’t say or do things YOU might regret later AND say all the things you wish to say, before we are gone. We need to hear them now.
We need a caregiver and patient advocate who is strong and caring and understanding of OUR wishes and not those you think we want. If others object to the plan in motion, remind yourself, these are our wishes, not theirs. This could be our finale, our last goodnight, and therefore needs to be our choice how things should be managed.
Personally, I don’t like to be fussed over. I prefer to do as much as possible for myself, even if it appears I’m struggling. I will let you know when I need help. I need that independence to get my strength back. If I let you do too much, it’s like saying, “I give up!” which is never a good thing. I think it’s essential for a cancer patient to remain emotionally strong and independent to survive, if not be down right stubborn.
I’m compelled to write this, because once again a fellow tongue cancer patient’s life hangs in the balance. The harsh realities are rearing their ugly heads. Bob Pemberton, is a friend and fellow tongue cancer patient. I met Bob after I completed my last surgery, while still sporting my feeding tube. We had a long “talk” about life with tongue cancer and the necessity of a feeding tube.
Bob, is someone I look up to after being through so much more than I have at this point. When I now look at Bob, I see what my future might be. He’s like the senior classmen and I the novice freshman student.
I generally maintain this blog to surround readers with my life and my cancer issues…Me, Me, Me! But, today I am inclined to open up the door and let Bob in. Not just Bob, but other readers and fellow cancer patients. I thought I would set the stage and have an open, raw, discussion with a man who is facing a death sentence. Something has compelled me to do this. I can’t tell you why, but I think either selfishly I need it, or I feel that others need to hear it. Especially those who are healthy and think they have something to worry about. Perhaps we’ll even touch on the meaning of life.
For me this is a personal project. I wanted to enroll the help of several people who are also surrounded by cancer in some way, to interview Bob. My goal is to obtain an open and honest dialog about doctors, treatments, and what it is like when you’re not sure if there is a tomorrow. For those of you who get upset because you get caught in a traffic jam, or have lost your home or job in this bad economy…look out, this might just change how you view the rest of your life!
If you had the opportunity to ask a dying man life altering questions, would you, could you? In Part 2 of this blog post you will find six seasoned cancer veterans who volunteered to step up and ask Bob some riveting and emotional questions. Bob has agreed that EVERYTHING is on the table for discussion. This has not been easy for any of us involved. So, stay tuned for the most enlightening story I’ve ever written.
©2009 Brian N. Walin (All rights reserved)
LINKS: PART 2 - PART 3
Friday, September 25, 2009
You BRAT!
I had a request from my massage therapist to write something funny because she needed a laugh. She thinks I'm funny for some reason.
It's not easy for me to write on demand, in fact it's extremely difficult and it's even more difficult to be funny at the same time. So I dredged my memory banks for a story that might put a smile on her face.
This is for you Maryann:
Right On Target!
While going through radiation and chemotherapy, the skin on my neck began to break down. The radiation burns were causing redness, swelling, bleeding, and excruciating pain. I used all kinds of products to help ease the pain, keep the skin moist, and a blue patch with a gel to keep the skin cool. All highly uncomfortable, but useful in someway. My world was nothing more than my Houston apartment, a medical bus, and the hospital during these many months.
Because I was on a feeding tube and all of my supplies arrived by UPS, it was almost unnecessary to leave my apartment. I had a lot of help from a wonderful nurse, and friends who had flown in to stay with me during the roughest times. I was very self conscious of my appearance because my face was so bandaged up, skinny as a rail, and fatigued from being poisoned and micro-waved.
One afternoon, I needed to venture out for some simple things. I was alone and no help was available. With my face and neck covered with bandages like a patch quilt, my weary body boarded the bus and ventured off to the local Target.
While shopping I noticed many people staring, but it wasn't as bad as I assumed it would be. I found people to be kinder, more helpful, but also very curious. I get so tired repeating myself to strangers. Sometimes it can be annoying, but being a curious person myself, I understand that their questions are harmless and more concerned in nature.
Except for one young man being pushed around the store in a shopping cart by his obviously frazzled mother. This boy was maybe four years old and extremely unruly...AKA: a BRAT! I followed behind as the frantic mother pushed the cart while her boy attempted to pull everything off the shelf he could reach. He was loud and obnoxious, demanding, and disruptive. He protested loudly, "I want that! I want that! Give it to me!" as his mother picked the items off the floor and kindly said to him, "You have enough for now. No more for today."
Personally, I would have beat the crap out of the kid at this point. I've NEVER been a big believer in "time-outs." Give him something to remember! Guess that's why I've never had children.
As his poor mother bent over to pick up the plethora of items strewn across the floor, he got a good glimpse of me all bandaged up in my Sunday finest. My expression was of displeasure for this young man as we had an eye to eye showdown.
He was seated in the shopping cart, facing backwards, looking directly at me. He stared me straight in the eye with a sneer and said in his bratty voice, "What happened to you?"
So I told the little boy my story. I knew I had to be gentle and make sure I chose my words carefully, so he would thoroughly understand..."My mother beat the crap out of me because I was acting up in a Target store, and now I have to be bandaged up the rest of my life!"
The expression on his face was sheer horror as he put back what he was holding in his hand neatly back on the shelf, as if in slow motion, without ever losing eye contact with me. At this point his mother wheeled herself around, probably readying herself with a "how dare to talk to my child that way" until she saw my bandaged face. Her expression went from anger to almost pity. Then, with a gentle smile, she silently mouthed the words, "Thank you!"
When she turned back around to face her little terror, her son's hands were clasped calmly in his lap and not a word out of either one of them as they continued down the isle in a slow calming bliss. I probably scarred him for life and his mother has me to thank!
Peace B
It's not easy for me to write on demand, in fact it's extremely difficult and it's even more difficult to be funny at the same time. So I dredged my memory banks for a story that might put a smile on her face.
This is for you Maryann:
Right On Target!
While going through radiation and chemotherapy, the skin on my neck began to break down. The radiation burns were causing redness, swelling, bleeding, and excruciating pain. I used all kinds of products to help ease the pain, keep the skin moist, and a blue patch with a gel to keep the skin cool. All highly uncomfortable, but useful in someway. My world was nothing more than my Houston apartment, a medical bus, and the hospital during these many months.
Because I was on a feeding tube and all of my supplies arrived by UPS, it was almost unnecessary to leave my apartment. I had a lot of help from a wonderful nurse, and friends who had flown in to stay with me during the roughest times. I was very self conscious of my appearance because my face was so bandaged up, skinny as a rail, and fatigued from being poisoned and micro-waved.
One afternoon, I needed to venture out for some simple things. I was alone and no help was available. With my face and neck covered with bandages like a patch quilt, my weary body boarded the bus and ventured off to the local Target.
While shopping I noticed many people staring, but it wasn't as bad as I assumed it would be. I found people to be kinder, more helpful, but also very curious. I get so tired repeating myself to strangers. Sometimes it can be annoying, but being a curious person myself, I understand that their questions are harmless and more concerned in nature.
Except for one young man being pushed around the store in a shopping cart by his obviously frazzled mother. This boy was maybe four years old and extremely unruly...AKA: a BRAT! I followed behind as the frantic mother pushed the cart while her boy attempted to pull everything off the shelf he could reach. He was loud and obnoxious, demanding, and disruptive. He protested loudly, "I want that! I want that! Give it to me!" as his mother picked the items off the floor and kindly said to him, "You have enough for now. No more for today."
Personally, I would have beat the crap out of the kid at this point. I've NEVER been a big believer in "time-outs." Give him something to remember! Guess that's why I've never had children.
As his poor mother bent over to pick up the plethora of items strewn across the floor, he got a good glimpse of me all bandaged up in my Sunday finest. My expression was of displeasure for this young man as we had an eye to eye showdown.
He was seated in the shopping cart, facing backwards, looking directly at me. He stared me straight in the eye with a sneer and said in his bratty voice, "What happened to you?"
So I told the little boy my story. I knew I had to be gentle and make sure I chose my words carefully, so he would thoroughly understand..."My mother beat the crap out of me because I was acting up in a Target store, and now I have to be bandaged up the rest of my life!"
The expression on his face was sheer horror as he put back what he was holding in his hand neatly back on the shelf, as if in slow motion, without ever losing eye contact with me. At this point his mother wheeled herself around, probably readying herself with a "how dare to talk to my child that way" until she saw my bandaged face. Her expression went from anger to almost pity. Then, with a gentle smile, she silently mouthed the words, "Thank you!"
When she turned back around to face her little terror, her son's hands were clasped calmly in his lap and not a word out of either one of them as they continued down the isle in a slow calming bliss. I probably scarred him for life and his mother has me to thank!
The Good or Bad Quandary
by Brian N. Walin
Who is to say if you’re good or you’re bad? You have to know now, with the life that you’ve had. You want to be good. You know that you should, but sometimes do bad things because that you could. They weren’t the right things, I’m sure you must know, and you could have changed them, despite what you show.
You are in charge of your destiny. You have to be wise and not choose poorly. You have the ability to help those in need. You have to try hard to do a good deed. It’s not all that easy doing things well. It sometimes takes longer, only time it will tell.
We all have our choices, they’re good or they’re bad, and sometimes the wrong ones can make you quite mad. But curbing your anger and channeling it well can help you immensely when going through hell. Learn from your anger and try to be smart. It’s not all that easy. It’s kind of an art.
But as you keep going through life you will see, that if you keep trying it becomes quite easy. Good or bad, it’s really your choice. You will soon learn that you have your own voice. The choices are yours. There’s no one to blame. Don’t make that excuse. It’s really quite lame.
The riches of life come from choices we make, the good and the bad, and paths that we take. So, if you choose paths you know that you should, you can answer yourself, if you’re bad or you’re good.
©2005 Brian N. Walin (All rights reserved)
1/24/05
Peace B
Sunday, September 6, 2009
Stupid Signs
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"The best way to find yourself is to lose yourself in the service to others." -Mahatma Gandhi








