For those of you who are just stumbling upon this blog, I have had a wild ride with tongue cancer (squamous carcinoma of the left later tongue and floor of mouth.) You might want to start at the beginning of "The Cancer Chronicles" for the full story located in the archives under "Search by Label" on the lower right. I'm still alive - a survivor - but it wasn't pretty nor easy, yet I am one of the lucky ones. That thought should bring great happiness in the fact that I'm alive, but the reality is I get depressed when I realize how many have lost the battle. Many of the people I grew to know during my journey are no longer here. I NEVER like to ask "Why?" It breaks my heart when I count all those I befriended and realize they left so many friends and family behind, and so far I survive. There is never an answer to "Why?"
My journey begins here: THE VERY FIRST BLOG POST (CC1)
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| There was one question I did ask repeatedly during the toughest times. |
Peace B
4 comments:
Hello, I found your blog today while searching for anything about tongue cancer. My cousin is 18 and she's losing her battle with stage 4 tongue cancer. She's been through chemo and radiation treatment for almost a year now and it's not working. Davis and Standford don't have anymore options for her. I'm not sure what exactly I'm looking for. Maybe help in being pointed in who else might be able to help her? Have you ever heard of a company called Genelex? Their a UK company I guess they've had some successful results with a new cancer treatment, its still in the testing stage. They say she's the perfect candidate because of the severity of her situation but they won't come try it on her because I don't know why it seams there afraid they'll get sued. I don't know all the details but emails and phone calls seem to be getting no where. And she doesn't have much time left. Pneumonia is threatening her now and we are hoping the antibiotics work long enough to maybe be able to try this new treatment. Anyway, you have an amazing story and any advice you can provide I would appreciate. Thank you.
Thank you CJ for leaving your message. Please contact me directly by email and perhaps I can help more (DocSwill@aol.com) Understand I'm not a real doctor, that is just a screen name I use, but if you can give me more specifics about what chemo has been used and more detail overall perhaps I can try to help.
You do understand that the odds are not good and if there are other opportunistic problems accompanying the cancer that just makes the situation worse. Rest, hydration, and nutrition are your first line of defense. Also keeping wounds cleansed and bandages changed regularly.
I went to MD Anderson Houston for my treatment Sloan-Kettering in New York is also a great cancer center.
I have a list of questions I's like to ask and perhaps even talk on the phone to make things go quicker.
Please email me. You didn't leave any contact info here, so I hope your come back and read this soon.
B
A TEAR JUST FELL FOR THIS CHILD. BRIAN YOUR THE REAL DEAL. I HOPE THIS MAN GETS IN TOUCH. RIGHT AT THIS MINUTE I'M PRAYING FOR FIVE PEOPLE WITH CANCER. TWO ARE VERY CLOSE TO ME. A 13 YEAR OLD GIRL[A RARE CAMCER] ALSO MY BEST FRIEND 80'S. IT HURTS SO MUCH TO NOT KNOW WHAT TO DO EXCEPT PRAY. DOC I DON'T GET THE PICTURE OF THE FUNERAL HOME. IT SCARES ME.
GRANNY FLORIDA
Amigone...OMG! That is a terrible name for a funeral home! At least there wasn't a question mark after the name! It's about as bad as the beauty salon called Curl Up and Dye!
Anyhow...so nice to see you back in the blogosphere. I have missed you and worried about you. You're not helping with the grey hairs my friend! Last night I was looking at some of my old blogs and YOU admonished me for not keeping up...so, back attcha!
Actually, your blog was very raw. I can't imagine losing so many people in such a short time and I can certainly understand your broken heart and depression.
That being said, I am sooooooooooo glad you ARE a survivor. I'm glad you are a blogger and generous enough to share your battles and accomplishments and fears and humor with us.
Welcome back!
M
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